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Estatística
Título: PROTECTION AND ACCESS TO MINORITY RIGHTS IN HEALTH RESEARCH: BRAZIL-FRANCE COMPARISON
Autor: CAROLINA MENDES FRANCO
Colaborador(es): CAITLIN SAMPAIO MULHOLLAND - Orientador
DANIEL ANGEL BORRILLO - Coorientador
Catalogação: 06/ABR/2020 Língua(s): PORTUGUESE - BRAZIL
Tipo: TEXT Subtipo: THESIS
Notas: [pt] Todos os dados constantes dos documentos são de inteira responsabilidade de seus autores. Os dados utilizados nas descrições dos documentos estão em conformidade com os sistemas da administração da PUC-Rio.
[en] All data contained in the documents are the sole responsibility of the authors. The data used in the descriptions of the documents are in conformity with the systems of the administration of PUC-Rio.
Referência(s): [pt] https://www.maxwell.vrac.puc-rio.br/projetosEspeciais/ETDs/consultas/conteudo.php?strSecao=resultado&nrSeq=47346&idi=1
[en] https://www.maxwell.vrac.puc-rio.br/projetosEspeciais/ETDs/consultas/conteudo.php?strSecao=resultado&nrSeq=47346&idi=2
[fr] https://www.maxwell.vrac.puc-rio.br/projetosEspeciais/ETDs/consultas/conteudo.php?strSecao=resultado&nrSeq=47346&idi=3
DOI: https://doi.org/10.17771/PUCRio.acad.47346
Resumo:
In the middle of the last century, treaties of human rights and the setting of ethical principles regarding human experimentation were not enough to prevent, in practice, violations of the dignity of the human person in medical experiments practiced in social minorities. Nowadays, there is a complex set of rules that aim not only to protect volunteers but also to ensure equitable access to research results. Contradictions and misinterpretations of these norms, however, limit the full realization of these guarantees, essential in relation to social minorities, in face of their lack of political representation in society. In this sense, an exploratory-descriptive study was carried out by reviewing the literature and applying a questionnaire designed to compare the responses presented by independent ethics committees from Brazil and France. It was concluded that it is imperative that the benefit-sharing be broadly applied in all research, including those that use personal data and body samples, especially with regard to social minorities in order to make progress increasingly accessible to all.
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