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Título:THE IMPACT OF THE PSYCHIATRIC REFORM ON THE FAMILY DAILY ROUTINE: THE CAREGIVER S PERCEPTIONInstituição:PONTIFÍCIA UNIVERSIDADE CATÓLICA DO RIO DE JANEIRO - PUC-RIO Autor(es):MARIA DO SOCORRO MALATESTA FREITAS
The general objective of this research is to study the impact of the Psychiatric Reform on the daily routine of family caregivers. There are also specific objectives: to analyze the caregivers perception of themselves and their daily life; to investigate the motivations that lead such family members to take care of their sick relatives; to analyze the implications of the caregivers gender in daily life; to investigate the social support networks that such caregivers have as reference, and their effectiveness; to describe the family members perception of mental health devices; to study the way they perceive the attention received during a crisis and their suggestions. We performed a qualitative research with 10 adult females that self-identified as relatives of a person with severe and persistent mental disorder. The data were obtained through semi-structured interviews and analyzed according to the content analysis method, in its categorical aspect. From the narratives, five categories of analysis emerged: daily care; implications of the caregiver s gender in daily life; territorial support networks; perception of the devices the attention received during a crisis and the suggestions of the relatives; which have been deployed in subcategories. The method used in this research allowed the family members to express themselves freely, and thus it was possible to perceive the struggle, the overload, the helplessness, the resentments, but also the grit, the strength and the survival strategies of these women. The overload to which these relatives are subject was prominent, and also these people coexist with anguish, fear, shame and fatigue came to prominence. Since attention to the crisis in the territory is not being offered as guaranteed in the Psychiatric Reform, this is also reflected in the matter of the social support network. The perception of the new devices brought to light divergent opinions: some family members were found to be emotionally structured and adapted to the care routines; they described the great support and welcome that they receive from the CAPS, also through the multifamily groups. On the other hand, some family members were found in situa-tions of great helplessness, with difficult in dealing with the CAPS professionals and dividing the responsibility of the care. They reported having to deal with the crisis of their sick relatives on their own. The precariousness of the services, the lack of medication, the non-implantation of the devices tells us of a lack of commitment of the public power with this population.