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Título: EXPERIENCE OF PARENTING WITH DEAF CHILDREN: CHALLENGES AND POSSIBILITIES
Autor: ANIELLE CRISTINE FARIAS QUEIROZ DOS SANTOS
Instituição: PONTIFÍCIA UNIVERSIDADE CATÓLICA DO RIO DE JANEIRO - PUC-RIO
Colaborador(es):  ANDREA SEIXAS MAGALHAES - ADVISOR
Nº do Conteudo: 46669
Catalogação:  31/01/2020 Idioma(s):  PORTUGUESE - BRAZIL
Tipo:  TEXT Subtipo:  THESIS
Natureza:  SCHOLARLY PUBLICATION
Nota:  Todos os dados constantes dos documentos são de inteira responsabilidade de seus autores. Os dados utilizados nas descrições dos documentos estão em conformidade com os sistemas da administração da PUC-Rio.
Referência [pt]:  https://www.maxwell.vrac.puc-rio.br/colecao.php?strSecao=resultado&nrSeq=46669@1
Referência [en]:  https://www.maxwell.vrac.puc-rio.br/colecao.php?strSecao=resultado&nrSeq=46669@2
Referência DOI:  https://doi.org/10.17771/PUCRio.acad.46669

Resumo:
Confirmation of the diagnosis of deafness of one s child may provoke internal conflicts in the hearing parents, hindering the emotional and affective investment in the deaf child. Given the importance of the family for the promotion of child development, this research aimed to investigate how hearing mothers and fathers experience parenting with a deaf child. To that end, we consider it important to address the definition of deafness and its possible causes, types, degrees and treatment of hearing loss, sociocultural conceptions of deafness and deaf culture. For a better understanding of the impact of the diagnosis in the exercise of parenting, we address some questions regarding the birth of a child very different from that expected by the parents, the adaptation / approximation with the deaf child - which requires a grieving process - and the particularities of the interaction between the hearing parents and the deaf child. We performed a qualitative study. Eight independent subjects, hearing parents (four men and four women) were interviewed. From the analysis of the discursive material of the participants interviews, six categories emerged: 1) Discovery of deafness: from suspicion to confirmation of diagnosis; 2) Confirmation of the diagnosis: mourning in parenthood with a deaf child; 3) The ideal of the talking son; 4) (Un) knowledge of deafness and its influence on parental care; 5) Support network in deafness; 6) Becoming resilient parents. We found that confirming the deafness diagnosis of the child is a complex situation for the hearing parents. The significant difference between the idealized and the real child, who was not born normal and healthy, is a challenge to be faced by the parents, who presented many difficulties in accepting the diagnosis. In addition, the understanding of deafness as a pathology and, in the face of this, the search for cochlear implants as a means of enabling the child to heal also act as obstacles to the process of acceptance and coping. The experience of mourning for the idealized child, the emotions and feelings resulting from this process, as well as the support network and the knowledge about deafness and the potentialities of the deaf person are essential elements that enabled the parents to resignify the diagnosis and to relate with the deaf child. This had repercussions on the process of resilience to the deafness of the child and on the health promotion of all family members. The results of this study also point to the need for support and guidance for the hearing parents, who are often mobilized and disoriented in the face of the creation of a deaf child.

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